The EB World Congress in January 2020 will be the first global Congress on EB, bringing together the world’s leading experts in EB research, clinical management, and the EB Community. Sharing state-of-the-art knowledge across the key stakeholders will give guidance to the professionals involved and support the development of strategies for research, regulatory, funding, and healthcare.
This inaugural event is being organised and funded by DEBRA UK in partnership with Cure EB with support from its Sponsors and as part of an alliance of more than 20 rare disease and dermatology organisations worldwide.
DEBRA UK funds pioneering research to find effective treatments and cures for EB, as well as providing care and support to improve the quality of life for individuals and families.
Cure EB is focused on accelerating research to cure all forms of EB. Research is aimed at corrective strategies and enabling translation into effective treatments and eventual cures.
Working alongside Cure EB as a key partner in EB 2020 strengthens the collaboration between researchers, funding bodies, and relationships with biotechnology companies.