Wednesday, 22 January 2020

The third day of the Congress, open to Industry and Standard ticket holders, focuses on research challenges, as well as clinical management strategies, case histories, and support models.

For any queries related to the programme, please email programme@ebworldcongress.org.

Please note: The Congress programme is updated monthly and the current version is, therefore, subject to change.

Programme overview

08:30 | WELCOME
Chairs: Jemima Mellerio & Jouni Uitto
Update - EB-CLINET
Sophie Kitzmüller

Clinical challenges of EB skin - inside and out
Anna Martinez

Advances in diagnostics/phenotyping (CPG)
Cristina Has

Questions
08:55 | CURRENT DILEMMAS – A CONGRESS DEBATE (Funding challenges)
Chair: Al Lane
Individualised therapies
Leena Bruckner-Tuderman

Allocation of research funds
Johann Bauer

Funding for EB research
Al Lane

Costs and accessibility
Peter Marinkovich

Open debate – how to increase research funding for EB; models of funding research; return on investment, ensuring we can develop management strategies for the wider group of patients/all types of EB
09:35 | UPDATE ON CLINICAL MANAGEMENT STRATEGIES (includes coffee break)
Chairs: Anna Martinez & Ignacia Fuentes
Superficial EBS/peeling skin syndromes
Eli Sprecher

Wound care (JEB)
Katie Plevey

Oesophageal management
Anna Bruckner

Gastrostomy
Joe Curry

ENT
David Albert

Oral health
Susanne Kramer

Questions

COFFEE BREAK

Eye
Michael Bartschi

Growth patterns
Antonia Reimer

Anaemia
Irene Lara-Corrales

Hand surgery – management strategies
Gill Smith

Surgery for SCC
Catina Bernardis

Podiatry
Tariq Khan

Questions
12:25 | LUNCH
13:25 | CLINICAL & MANAGEMENT CASE HISTORIES
Chairs: Eli Sprecher & Hana Buckova
CASE REPORT: SCC management and response
Anna Bruckner

CASE REPORT: SCC management and response
Pavel Rotschein
13:55 | QUALITY OF LIFE (PAIN & ITCH)
Chair: Marieke Bolling
Cannabinoids – pain and itch
Nic Schrader

Small fibre neuropathy
Margarita Calvo

Psychology of pain
Boris Zernikow

Pruritus in EB
Hagen Ott

Questions
14:50 | TEA BREAK
15:20 | SUPPORT MODELS
Chairs: Anna Martinez & Anja Diem
Multidisciplinary team best practice (GSTT) Rare Disease Centre
Jemima Mellerio

Managing EB in a resource limited setting
Ravi Hiremagalore

Telemedicine
Danielle Greenblatt

EB-associated SCC: The Jefferson Adult EB and Complex Skin Cancer Clinic
Bahar Dasgeb

Educational programmes
Christine Bodemer

International EB patient registry
Godfrey Fletcher

Innovation in patient data platforms
Michael Hund

Panel discussion
16:45 | STRATEGIES FOR CARE – STATUS UPDATE
Chairs: Anna Martinez & Anja Diem
A potential new therapeutic approach targeting wound infection – disrupting bacterial communication
Erik Gerner

Development of two topical approaches to wound healing in EB. An update on progress with Oleogel-S10 and AP 103
Mark Sumeray

The impact of antimicrobial resistance on topical treatment selection
Gilles Brackman

The role of Hydrofiber dressings in EB wound management
Rachel Torkington-Stokes

Questions
18:15 | CLOSE
X
//]]>