EB 2020 Congress Programme

The Congress planning is in progress and the programme is still being developed. Please check back often, as more information will be added soon. For any queries related to the programme, please email programme@ebworldcongress.org.

Please note: The Congress programme is subject to change.
Sunday, 19 January 2020
Pre-booked meetings

Please contact Jenny Jackson, Sponsorship Lead at sponsorship@ebworldcongress.org for more information about securing meeting space at the Congress venue on this date and for all other EB 2020 sponsorship opportunities.

Welcome Reception

Everyone is invited to a complimentary Welcome Reception on Sunday, 19 January 2020 from 19:00 - 21:00. Tickets must be reserved in advance from the Congress registration page.
Monday, 20 January 2020
Welcome by Jouni Uitto

Classification

Current dilemmas – a congress debate (panel)

The complexity of EB

BREAK

The challenges of EB skin

Inflammation, fibrosis and therapeutics

Oral presentations

BREAK

Cancer & cancer therapeutics

Oral presentations

BREAK

Therapeutics

Natural history – implications for clinical trial design

Tuesday, 21 January 2020
Welcome by Jemima Mellerio

From theory to practice – translational medicine into clinical trials

Cell manipulation and therapies

BREAK

Gene manipulation and therapies

Oral presentations

BREAK

Clinical trials

BREAK

Current dilemmas – a congress debate (panel)

Measurement and research

Wednesday, 22 January 2020
Clinical challenges of EB skin - inside and out

Advances in diagnostics/phenotyping

Current dilemmas – a congress debate (panel)

Funding challenges

Update on clinical management strategies

BREAK

Clinical and management case histories/Oral presentations

Quality of life (pain & itch)

BREAK

Support models

Thursday, 23 January 2020
Sharing best practice

Summary of what’s gone before

Psychosocial aspects of living with EB

Living with EB

Patients in clinical trials – a congress debate (panel)

Driving EB care & research forward

A global approach to EB care & research

Plenary overview

Monday
20 January 2020

Tuesday
21 January 2020

Wednesday
22 January 2020

Thursday
23 January 2020

EB Community members may only attend this day
Welcome by Jouni Uitto Welcome by Jemima Mellerio Clinical challenges of EB skin - inside and out Sharing best practice
Classification From theory to practice – translational medicine into clinical trials Advances in diagnostics/phenotyping Summary of what’s gone before
Current dilemmas – a congress debate (panel) Cell manipulation and therapies Current dilemmas – a congress debate (panel) Psychosocial aspects of living with EB
The complexity of EB Funding challenges Living with EB
Gene manipulation and therapies Update on clinical management strategies Patients in clinical trials – a congress debate (panel)
The challenges of EB skin Oral presentations Driving EB care & research forward
Inflammation, fibrosis and therapeutics Clinical and management case histories/Oral presentations A global approach to EB care & research
Oral presentations Clinical trials Quality of life (pain & itch)
Cancer & cancer therapeutics Current dilemmas – a congress debate (panel) Support models
Oral presentations Measurement and research
Therapeutics
Natural history – implications for clinical trial design
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