EB 2020 Congress Programme

The Congress planning is in progress and the programme is still being developed. Please check back often, as more information will be added soon. For any queries related to the programme, please email programme@ebworldcongress.org.

Please note: The Congress programme is updated monthly and the current version is, therefore, subject to change.
Sunday, 19 January 2020
Pre-booked meetings

Please contact Jenny Jackson, Sponsorship Lead at sponsorship@ebworldcongress.org for more information about securing meeting space at the Congress venue on this date and for all other EB 2020 sponsorship opportunities.

Welcome Reception

Everyone is invited to a complimentary Welcome Reception on Sunday, 19 January 2020 from 19:00 - 21:00. Tickets must be reserved in advance from the Congress registration page.
Monday, 20 January 2020
Welcome by Jouni Uitto

Classification

Current dilemmas – the complexity of EB

The challenges of EB skin

Inflammation, fibrosis & therapeutics

Cancer & cancer therapeutics

Therapeutics

Natural history – implications for clinical trial design

Tuesday, 21 January 2020
Welcome by Jemima Mellerio

Cell manipulation & therapies

Gene manipulation & therapies

Clinical trials

Working together – partnerships, charities, regulators, & industry

Current dilemmas – measurement & research

Wednesday, 22 January 2020
Clinical challenges of EB skin – inside and out

Advances in diagnostics/phenotyping (CPG)

Current dilemmas – funding challenges

Update on clinical management strategies

Clinical & management case histories

Quality of life (pain & itch)

Support models

Thursday, 23 January 2020
A global approach to EB

Updates in EB research

Current dilemmas – patients in clinical trials

Living with EB

Updates in EB clinical care

EB Community open forum

Plenary overview

Day 1
Monday
20 January 2020

Day 2
Tuesday
21 January 2020

Day 3
Wednesday
22 January 2020

Day 4
Thursday
23 January 2020

EB Community members may only attend this day
Welcome by Jouni Uitto Welcome by Jemima Mellerio Clinical challenges of EB skin – inside and out A global approach to EB
Classification Cell manipulation & therapies Advances in diagnostics/phenotyping (CPG) Updates in EB research
Current dilemmas – the complexity of EB Gene manipulation & therapies Current dilemmas – funding challenges Current dilemmas – patients in clinical trials
The challenges of EB skin Clinical trials Update on clinical management strategies Living with EB
Inflammation, fibrosis & therapeutics Working together – partnerships, charities, regulators, & industry Clinical & management case histories Updates in EB clinical care
Cancer & cancer therapeutics Current dilemmas – measurement & research Quality of life (pain & itch) EB Community open forum
Therapeutics Support models
Natural history – implications for clinical trial design
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