EB 2020 Congress Programme
The Congress planning is in progress and the programme is still being developed. Please check back often, as more information will be added soon. For any queries related to the programme, please email programme@ebworldcongress.org. Please note: The Congress programme is updated monthly and the current version is, therefore, subject to change.Sunday, 19 January 2020
Pre-booked meetings
Please contact Jenny Jackson, Sponsorship Lead at sponsorship@ebworldcongress.org for more information about securing meeting space at the Congress venue on this date and for all other EB 2020 sponsorship opportunities.
DAY 1: Monday, 20 January 2020
Welcome by Jouni Uitto
Classification
Current dilemmas – The complexity of EB
The challenges of EB skin
Inflammation, fibrosis & therapeutics
Cancer & cancer therapeutics
Therapeutics
Natural history – implications for clinical trial design
DAY 2: Tuesday, 21 January 2020
Welcome by Jemima Mellerio
Cell manipulation & therapies
Gene manipulation & therapies
Clinical trials & research programmes
Current dilemmas – Measurement & research
DAY 3: Wednesday, 22 January 2020
Current dilemmas – Funding challenges
Update on clinical management strategies
Clinical & management case histories
Quality of life (pain & itch)
Support models
Strategies for care - status update
DAY 4: Thursday, 23 January 2020
A global approach to EB
Updates in EB research
Current dilemmas – Patients in clinical trials
Living with EB
Updates in EB clinical care
EB Community open forum
Plenary overview
Day 1 Monday 20 January 2020 |
Day 2 Tuesday 21 January 2020 |
Day 3 Wednesday 22 January 2020 |
Day 4 Thursday 23 January 2020 EB Community members may only attend this day |
Welcome by Jouni Uitto | Welcome by Jemima Mellerio | Current dilemmas – Funding challenges | A global approach to EB |
Classification | Cell manipulation & therapies | Update on clinical management strategies | Updates in EB research |
Current dilemmas – The complexity of EB | Gene manipulation & therapies | Clinical & management case histories | Current dilemmas – Patients in clinical trials |
The challenges of EB skin | Clinical trials & research programmes | Quality of life (pain & itch) | Living with EB |
Inflammation, fibrosis & therapeutics | Current dilemmas – measurement & research | Support models | Updates in EB clinical care |
Cancer & cancer therapeutics | Strategies for care – status update | EB Community open forum | |
Therapeutics | |||
Natural history – implications for clinical trial design |