Additional events taking place during the Congress
For any queries related to the programme, please email programme@ebworldcongress.org. Please note: The Congress programme is updated monthly and the current version is, therefore, subject to change.Side Fora
EB COMMUNITY – OPEN FORUM
23 January | 13:00 - 15:00 | Allied healthcare professionals in-depth discussions
CLINICAL PRACTICE GUIDELINE (CPG) PANEL MEETINGS – BY INVITATION ONLY
19 January | 09:00 - 17:00 | Transition in EB
20 January | 09:00 - 17:00 | Pregnancy, childbirth, and aftercare in EB
21 January | 09:00 - 17:00 | Palliative care in EB
22 January | 09:00 - 17:00 | Enteral and parenteral nutrition in EB
23 January | 09:00 - 17:00 | Neonatal care in EB
DEBRA GROUPS – BY INVITATION ONLY
20 January | 10:00 - 12:00 | Marketing and Communications
20 January | 13:30 - 15:30 | Community/Family support
21 January | 11:00 - 13:00 | Fundraising
21 January | 14:30 - 16:30 | Advocacy/Lobbying
22 January | 18:00 - 21:00 | DEBRA International and DEBRA groups
ALLIED HEALTHCARE PROFESSIONALS FORUM – SIGN-UP ONLY
To sign-up for the AHP Forum, please complete the form:
www.ebworldcongress.org/allied-healthcare-professionals-forum 21 January | 14:30 - 17:30 | Allied Healthcare Professionals
www.ebworldcongress.org/allied-healthcare-professionals-forum 21 January | 14:30 - 17:30 | Allied Healthcare Professionals
OTHER MEETINGS – BY INVITATION ONLY
19 January | 08:30 - 12:00 | DEBRA International
19 January | 13:00 - 17:00 | EB Without Borders
22 January | 08:00 - 17:00 | DEBRA International
ALLIED HEALTHCARE PROFESSIONALS COURSE – SIGN-UP ONLY
To learn more, register, and apply for a bursary (funded by DEBRA UK) for the EB Skills in Podiatry Course, please visit:
www.debra.org.uk/healthcare/podiatry 21 January | 09:00 - 13:00 | EB Skills in Podiatry Course
www.debra.org.uk/healthcare/podiatry 21 January | 09:00 - 13:00 | EB Skills in Podiatry Course
Other events
RARE DISEASES CENTRE TOUR – SIGN-UP ONLY
To learn more and sign-up for the Rare Diseases Centre Tour, please visit:
www.ebworldcongress.org/rdc-tour/ 21 January | 18:15 - 19:45 | Rare Diseases Centre (RDC) Tour
www.ebworldcongress.org/rdc-tour/ 21 January | 18:15 - 19:45 | Rare Diseases Centre (RDC) Tour