Additional events taking place during the Congress

For any queries related to the programme, please email programme@ebworldcongress.org.

Please note: The Congress programme is updated monthly and the current version is, therefore, subject to change.

Side Fora

EB COMMUNITY – OPEN FORUM
23 January | 13:00 - 15:00 | Allied healthcare professionals in-depth discussions

CLINICAL PRACTICE GUIDELINE (CPG) PANEL MEETINGS – BY INVITATION ONLY
19 January | 09:00 - 17:00 | Transition in EB

20 January | 09:00 - 17:00 | Pregnancy, childbirth, and aftercare in EB

21 January | 09:00 - 17:00 | Palliative care in EB

22 January | 09:00 - 17:00 | Enteral and parenteral nutrition in EB

23 January | 09:00 - 17:00 | Neonatal care in EB

DEBRA GROUPS – BY INVITATION ONLY
20 January | 10:00 - 12:00 | Marketing and Communications

20 January | 13:30 - 15:30 | Community/Family support

21 January | 11:00 - 13:00 | Fundraising

21 January | 14:30 - 16:30 | Advocacy/Lobbying

22 January | 18:00 - 21:00 | DEBRA International and DEBRA groups

ALLIED HEALTHCARE PROFESSIONALS FORUM – SIGN-UP ONLY
To sign-up for the AHP Forum, please complete the form:
www.ebworldcongress.org/allied-healthcare-professionals-forum

21 January | 14:30 - 17:30 | Allied Healthcare Professionals

OTHER MEETINGS – BY INVITATION ONLY
19 January | 08:30 - 12:00 | DEBRA International

19 January | 13:00 - 17:00 | EB Without Borders

22 January | 08:00 - 17:00 | DEBRA International

ALLIED HEALTHCARE PROFESSIONALS COURSE – SIGN-UP ONLY
To learn more, register, and apply for a bursary (funded by DEBRA UK) for the EB Skills in Podiatry Course, please visit:
www.debra.org.uk/healthcare/podiatry

21 January | 09:00 - 13:00 | EB Skills in Podiatry Course

Other events

RARE DISEASES CENTRE TOUR – SIGN-UP ONLY
To learn more and sign-up for the Rare Diseases Centre Tour, please visit:
www.ebworldcongress.org/rdc-tour/

21 January | 18:15 - 19:45 | Rare Diseases Centre (RDC) Tour

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