Global EB AllianceThe Global EB Alliance is a group of more than 20 rare disease and dermatology organisations worldwide supporting EB World Congress and the inaugural EB 2020 event.
DEBRA UKDEBRA UK is the UK charity supporting people suffering from Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.
- We fund pioneering research for symptom alleviation and, ultimately, a cure.
- We provide life changing care and support to the EB Community.
Cure EBCure EB exists to treat and cure epidermolysis bullosa, a genetic skin condition that leads to blistering and skin loss with the mildest friction. It is “Hard to say. Hell to live with” and children and adults with the condition live in constant pain associated with the burn like wounds that occur. The intense pain and repeated damage leads to progressive disability and severe forms are life shortening due to a particularly aggressive skin cancer that develops in early adulthood. We have a focus on accelerating research to cure all forms of EB. Research is targeted at gene modifying and corrective strategies that aim for translation into effective treatments and eventual cures. Our relationships with academia and research scientists, other non profits, foundations, companies and the biotech industry will help us achieve our goal.
ActaDVActa Dermato-Venereologica is an international peer-reviewed journal for clinical and experimental research in the field of dermatology and venereology. It publishes high-quality manuscripts in English dealing with new observations on basic dermatological and venereological research, as well as clinical investigations. Each volume features a number of Review articles in special areas, Original reports and Short Communications to stimulate debate and to disseminate important clinical observations. Visit www.medicaljournals.se/acta to learn more.
ASMBThe mission of the ASMB is to promote basic, translational, and clinical research on the extracellular matrix (ECM), cell-ECM interactions, and ECM-based therapies and devices, and to support the growth and professional development of the ECM research community. The ASMB promotes interactions among academia, scientific societies, industry, and government; facilitating dissemination of relevant knowledge and new findings; providing mentoring opportunities to junior scientists; and advocating sustained funding for research and education. Each year ASMB offers travel awards and hosts either regional workshops or a larger conference. Visit the ASMB website for more information about the society and upcoming events. www.asmb.net
British Skin FoundationThe British Skin Foundation are the only UK charity that raises money to fund research into all types of skin diseases, including skin cancer. Sixty percent of British people currently suffer from or have suffered with a skin disease at some point during their lifetime. Whilst some skin conditions are manageable, others are severe enough to kill. We are here to help change that by raising money for vital research to help find cures and treatments for common skin conditions like eczema or acne, through to potential killers like malignant melanoma. Founded in 1996, the British Skin Foundation has supported 400 research projects and awarded £16,000,000 in funding across all skin diseases. Whilst we are dedicated to raising money for research, we also aim to raise awareness of skin diseases in the wider community. We're committed to educating people about the different skin conditions, helping to reduce stigma and promote understanding. The British Skin Foundation receives no statutory funding and relies on completely on donations. Find out more about our research here.
DEBRA of AmericaThe Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) is the only U.S. nonprofit providing all-inclusive support to the EB Community, through funding research for a cure and by providing free programs and services for those with: Epidermolysis Bullosa (EB) — "The Worst Disease You've Never Heard Of." Visit www.debra.org to learn more.
DEBRA AustriaDEBRA Austria is the Austrian national charity that supports individuals and families affected by EB – a painful genetic skin blistering condition which, in the worst cases, can be fatal. DEBRA Austria was founded in 1995 by parents of children with EB and is founding member of DEBRA International, a worldwide network of more than 50 national patient support groups. Our key activities are…
- We provide care and support to improve the quality of life for individuals and families living with EB.
- We established and run the world’s first dedicated EB clinic, the EB Haus Austria: outpatient unit, research unit, study centre and academy.
- We fund excellent research around the globe to find effective treatments and, ultimately, a cure for EB.