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Congress partners

We are grateful to our Congress partners for helping to endorse, promote, fund, and fundraise for EB World Congress. All Congress partners are organisations working in the field of EB - either in research, care, and/or support - with the aim of helping to improve the quality of life for those who suffer from the condition.

We look forward to working with our all of our Congress partners and sponsors.

Please visit our sponsorship opportunities page to see the benefits of sponsoring EB 2020 for your company. Jenny Jackson, Sponsorship Lead, would be delighted to talk about tailoring the packages for your organisation's needs. Please contact Jenny via to discuss ways your organisation can get involved.

Cure EB

Cure EB is pleased to be partnering with Debra UK to deliver the EB World Congress in January 2020.

Uniting the global EB community, The EB World Congress is a huge opportunity for all the key stakeholders to learn about the very latest updates on current projects around the world and work together to devise strategies to accelerate EB research, treatments and cures.

Cure EB is fully engaged in this collaborative forum to build greater momentum in the research community, supporting any initiatives that will speed up the process for effective research and treatments towards our ultimate mission - to cure EB.

Visit to learn more.

EB Research Partnership

Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder, of Pearl Jam, EB Research Partnership (EBRP) is the largest nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth. EBRP ensures sustainable funding for future EB research through our innovative venture philanthropy model. Instead of simply writing grants, EBRP funds research projects in exchange for a financial interest in the work. If those projects lead to commercially successful therapies, we use the returns from our shares to fund additional EB research. To date, EB Research Partnership has raised over $35M and funded more than 65 EB research projects to accelerate the path to treatments and cures. Together, we can #healEB.